We are home!
Thank you so much for your prayers! This morning was not what we had been expecting. Neurology came in around 9am (EEG is planned to run until 2pm). They asked if I felt like he had done all of the questionable behaviors while attached to the EEG. We really felt like they had gotten the full picture. The behavior that the doctor saw which started this question was definitely present multiple times. There were some other movements that happened that I thought, "I'm glad that happened while he was hooked up. Now they can tell us if that's a seizure or not."
After confirming that she said, "Well, the EEG shows that none of that is seizures." I teared up immediately and said, "I'm sorry. I've been anxious about this. That's great! Keep going. I'm fine. I promise." So he is high risk for developing seizures--which is not new information to us--but he is not having seizures.
Once again, I want to write more. I have so many thoughts in my head. However, I did not sleep a lot last night and am going to bed now. I will write more about this experience later. But we wanted y'all to know that we are home. And that Leo is not having seizures! We are giddy and praising God. Being home is such a sweet gift.
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