From the hospital

     I am working on another post with some pictures and more like a journal of our time here. But right now I need to try and get some sleep. But I would like to update anyone looking for an update!

    We are around 10 hours into the 24. This has gone so much better than expected. Leo was in mostly happy moods until right before falling asleep. It's not fun seeing him in the EEG head wrap. Feels like he's a really sick kid. And it's not fun pressing the red button when you see behavior that could be seizures. And then it's really not fun to think about neurology coming tomorrow and possibly telling us about all of the seizures that he's having. The EEG is kinda just in your face and ugh. But Brad was here the whole day. And we've had really cool nurses. 

    Prayers appreciated for the night. Leo is asleep and then almost waking up with some pushing and fussing. I think he's getting frustrated with the head garb. All the wires plus his night time feed are not fun to manage. 

Oh! Also he didn't puke any of his food or meds today so that was a sweet gift from God.


Alright, I need to sleep. Thanks for praying for us. Please pray for patience for me tonight if Leo is fussy. And, yeah, prayers for seizure possibilities and processing that and learning new things.

Love you guys!

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