Leo, Our Little Lion Man

      We had an appointment with the pediatrician yesterday to look at Leo's weight. He is having trouble with weight gain. I discussed a plan with the pediatrician and even got our neurologist's feedback on it. We are moving ahead and will be back in two weeks to check Leo's weight.     Please pray that Leo gains weight. At this point, from my understanding, this is a very normal problem for babies to have. As in, babies without brain injury can struggle with this. However, if he does not gain weight then we will need to go to a GI doctor to have some tests done. I don't know exactly what they would be looking for, but potentially issues with his tone could affect how he eats.      Please, pray that he gains weight. And pray for peace in our house. It's a seemingly small issues, but there's these small voices in the back of our minds that say, "What if it's something more serious?"     Also, I know you're still praying with us for a miracle wi

      It's been a while! But there's some scattered things to give updates on! I keep thinking about how this blog started. When Leo was born, we were on a day-to-day updating basis. After the MRI results were given to us at CHOP, we were updating this every couple of days. Once we came home it was kind of every couple days or every appointment. Now, here we are. We are home and getting into a groove. It may sound strange, but that's it's own thing to process. But here's what's up with the little lion man.     So, I just wanted to take a moment to tell you about Leo's personality instead of only his....conditions (not quite sure the right word to use). Let me just tell you that this little boy is such a talker! What a beautiful voice. Shocker, right? The child of Brad and Charis Wilcox is a talker. He is so responsive to voices and music. And we definitely have those times where he's not angry or sad or whatever--he's just talking because he wants to

      I don't know why it's coming to me this way, but I'm just going to do a basic--and maybe confusing--where are we at? I may repeat myself, but I just want to do a recap (for myself) of where we are at. An overview?     Here it is.     I'm pumping, off dairy (trial run), and giving Leo breastmilk in bottles. Looking back to when the doctor's said, "We'll see if he can eat on his own," to now......wow. I remember the first time he sucked on the bottle. What a relief. I am very thankful that we went through all of that to get to this point. This is one of those places where I'm reminded that this isn't a brain damage issue. Not all babies breastfeed. At his last weight check, Leo gained at a good rate but still hasn't made up, per say, from the time that he was nursing and not getting enough. So, we are talking about options with our pediatrician and just making sure we are on top of his nutrition. Big things we are thankful for: milk sup