Didn't expect this

     Well, the past two weeks have carried a bit of drama for us. I meant to write out more of my thoughts in the moment, but the moment passed me. So, a bit of a long story short: Leo's pcp wondered if she was seeing seizures.

    That lead to doing a 30min EEG. The results of that EEG showed some "abnormalities". Neurologist from CHOP would like a 24hr EEG to give us a better picture of what's going on in his brain. It seems to me that seizures are not as black and white as I thought they were. There has been talk of "will this weird brain activity turn into seizures?" There's just a lot of looking and assessing. No one has said that the 30min EEG caught "seizures". Also, his neurologist said that she would not feel comfortable prescribing seizure meds without doing a 24hr EEG. 

    So tomorrow morning we are headed to the ED as that is the quickest way to get admitted for a 24hr EEG. Today was a bit hectic in trying to assess with his neurologist what the urgency of getting this done was. She was recommending going in today. We ended up deciding to get a night's sleep at home (we're all getting over colds) and giving ourselves a little more time to prepare. 

    Can you please pray for us tomorrow? I hate hospital stays. I hate them. And a 24hr EEG?! Is it gonna be tough with Leo's movement and having the stuff on his head? Will I be able to feed him normally and do his normal meds? I just hate the chaos of having to figure that out. UGH. Our week is not what we thought it was going to be. That's not fun. I'm not good with change. And I don't want to put the energy in to be grateful and think about what God is doing. I don't feel like doing that. I just feel like pouting. 

    Then there's the whole "is he having seizures?" to deal with. That's a lot to process. Seizures are one of my biggest fears. My mind goes to worst case scenario. It goes to the big ones that are awful. It goes to rescue meds. I'm learning the seizures can be a whole spectrum. And, praise the Lord for medicine because it is possible to manage seizures. It's just that nothing is certain. And things can change. And UGH. 

    Even if he's having seizures, Leo is still the same kid. It's just us learning new information. And if he is having seizures, God will give us the ticket to get on that train when it's time and not before. God's got all of the tickets. Your prayers are appreciated. We are feeling discouraged. 

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