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Showing posts from May, 2023

Our Weekend Away

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      Brad and I got away for two nights! We left on a Friday afternoon and came back that Sunday afternoon. We have left Leo before for just about 24 hours twice. But one of those was while he was in the hospital so it doesn't really feel like it counts. This was such a special little trip.     I have to brag on my husband a little bit. He picked our location, found our lodging, and planned what little of it we did plan. He was very intentional and attentive in communicating the value of the two of us having time together and getting away.      We are both so grateful for my mom and my sister, Phoebe. Mom watched Leo for the first 24 hours about and then Phoebe and her family took over. Leo spent Friday night at our house with Nana and D (the nurse) and then spent Saturday at my sister's house! It was so sweet to leave him in very capable hands. We wrote up about 3 pages of "instructions" and helpful things. Leo got meds and fed well and didn't puke very much. Hi

From the Mama...

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    Therapy is a beast. I know I've talked about this before, but this is honestly what is most pressing for me right now. Stepping back and looking at the big picture, though? Leo is killing it. He's rocking it! He's got 4-6 therapy sessions a week and he works really hard in each one. He greets the therapists with a smile 99% of the time. He loves having someone other than mom to play with--not that mom is bad, it's just so exciting when someone comes over . He's developing on his own beautiful curve (although I really don't know if it's that shape or not). Some skills come more slowly than others. Some skills are modified to Leo's body and sometimes we push him to do them in a way that is not  natural to his body. He's just very strong, mentally and physically, and he's got a good life.     But what's it like from my point of view?  It's so hard to not take on the pressure of desired outcomes for Leo when it comes to therapy. I think t