Leo, Our Little Lion Man

      I have heard from many other mothers of special needs children that those first approximately 3 years can be particularly overwhelming. I've been contemplating that today.      We just had a weight check with our pcp. Leo's doing well. He's having some issues at night--just not sleeping through--and I think that it has to do with being fed and digesting at night. I explained to the doctor that I would like to work toward giving him less at night and more during the day. So we discussed how we could play around with this.      She then told me that she thinks we should come back and see her in three months ...!     So. We are seeing our GI doctor in three months and our pediatrician in 3 months while keeping both updated on his eating and puking and weight gain. I talk with our nutritionist. I know if I have any questions or concerns she'll help me without an appointment. We are going in to Philly for an in-person neurology check up. But, otherwise, those are every

     As time goes on, these updates will change--and they have changed. We started out posting a couple of times a day. Big updates and new information was coming rapidly. When we came home from the hospital the first time, there were so many appointments and transitions happening. These days there's therapy and the occasional appointment or big appointment. I know that we are not past all of the craziness. We'll never be passed all of it. What I'm saying is that when there is a lot of new things happening there's a lot of information to give in these updates. However, when not as much new data is being collected, these updates are more how we're doing (emotionally and mentally) than information-giving.     I'll start with Leo and then it'll fan out from there. He is getting over RSV. Praise God for a strong immune system. Handling phlegm and coughing proved to be a bit difficult for him with his muscle tone, but he is a strong kid. His nights have been mis