Leo, Our Little Lion Man

      Leo has a buddy. Leo and Isaiah are different in a lot of ways, but also very similar in special ways. They get things that not many other people get about them. From a mama's perspective, a practical way to explain it is this: Leo and Isaiah are about 6 months apart, non verbal, not mobile, and g tube fed. They get each other. And they are so fun to see hang out.      Isaiah's mommy and I were having a coffee date with our boys. During our time, I had a sweet realization of something that I am coming to understand more and more in this stage of life. God is continuing to teach me a lot about Leo's therapy, Leo's body, and engaging with others.      I used to freak out every time Leo missed a therapy session. It felt like a big no-no. Brad and I didn't want to be not prioritizing therapy. Making a call between therapy or another activity was hard. It was just hard to prioritize. And I think it felt like any time prioritizing something over therapy was wrong .

    Recently, we've been getting this question more. And I want to be honest, I don't quite know how to answer that question. I believe it is asked with sincere desire to see the difficulties we/he have, and to seek to understand something that is not experienced by the person asking. But it's a little weird to answer and I want to try and explain why...     When Leo was younger, this felt a bit more applicable. We had specific questions that we were trying to answer and there were still some typical milestones being met. I think that's the biggest thing. We had specific questions that we were trying to answer. Leo was failure to thrive. We couldn't travel without him drenching himself in sweat in the car seat. The stroller was a similar story. We were seeing new specialists or finding another doctor. We were starting a new therapy, practicing a familiar one. Etc. Etc.      And in our current stage, I don't feel like we have as many or as pressing specific quest

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