Leo, Our Little Lion Man

 Hiya' Friends! These are some things regarding Leo's care, appointments, therapies, development, etc. that are rolling around in our heads these days. Eating, Pukes, Weight We haven't seen nutrition or GI in a little bit. We've monitored his weight in our own way or through some of the appointments we have had. It's not at a totally great place, but I'm not too concerned. He is mostly going up, but has some up and downs just not drastic. Brad and I are confident in feeding Leo some food that we blend up ourselves (instead of the packaged) in order to expand our options of what we can feed him. We are not replacing meals with what we have blended, but just introducing new ingredients into his system in a more significant portion (60mls of blended food). This is a bit of a time-consuming process and so far we have run into one ingredient that did not seem to sit well in his system. He did not seem to adjust to it even with some time. We have seen that feeding him

I've taken some pictures of seemingly insignificant moments or things with the hope of putting into words what I see in these pictures. A snapshot in the bathroom at the end of therapy That woman, that mom in the picture, she's happy. And you see her mug? "You are not alone." She's telling other moms that are experiencing similar things that they are not alone. She wants to give them hope. And that means that she has hope herself. She used to be very distraught at therapy. She used to feel like therapy was a reminder of everything that she wasn't doing, all the ways she had failed her son. But she's learning to embrace her limits, practice gratitude, and she's at peace with her son's struggles. She is understanding more every day that therapy isn't to fix him, it's to help. And from that  place, she can focus on what God wants for the day and the therapy session, not the overwhelming need to fix what he's got going on.  Coffee, CHOP flo