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Showing posts from January, 2023

Long, Scattered, Good, Incomplete...

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      Leo had a check up with his PCP and it went so well! His weight was up. He's not huge, but he's on a "Leo curve." His length and head circumference are growing. His BMI is 50th percentile. And the biggest thing was that she didn't change his eating regiment. Let me explain why that's so huge.     First, I need to back up. Anticipating this appointment was a bit of a mental struggle. We had so many "check ups" where we heard "no weight gain," "weight loss," "no weight gain," "try this," "try that." We've had so many bad appointments. So when we haven't been to an appointment in a while and we are preparing for one, old emotions are stirred up. It's easy to expect bad news. And bad news--or hard news--from an appointment like this one means that the doctor tells you to start a completely new routine or schedule. I would work so hard to keep Leo on his set feeding schedule and when a ne

EEG Day.....and results!

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      Friday went so well!! My sister-in-law, Amber, came into Philly with me and we were feeling very accomplished at all that we could do before 12pm. Leo's first appointment was at 9:15am and we were home around 2:30pm.     Getting the EEG was interesting. We got in the room and I laid Leo onto the bed. The lady (I don't know her job title) then said she had to swaddle Leo so that she could attach all the wire things to him. He did not like that. That was honestly the hardest part. He wasn't completely losing his mind. He was doing better than I would've thought. But he was not happy. I held his hand, put a teether in his mouth, breathed on his face (I know it sounds weird, but it can help calm him down) and sang to him. They helped a little bit. While this was going on I asked the lady about results. She said to expect them in about a week.      So Leo stayed strapped up for maybe 3-5 minutes of the EEG. Oh. I forgot to say that while she was getting him hooked up,